Aphasia is usually the result of a brain injury, often a stroke. The disorder doesn’t alter a person’s intelligence but can make communicating difficult, if not impossible.
June is National Aphasia Awareness Month, a designation meant to draw public attention to this isolating disorder that experts say affects 25% to 40% of stroke victims. At the Teals’ home in Canton, every day is Aphasia Awareness Day and a new opportunity to make life better for Ryan and others with the disorder.
“Not that I would wish this condition and these circumstances on anyone, but, of all people, Ryan is not deserving of going through such a hard time,” Anna said. “He is the strongest, kindest, most loving person I’ve ever met.”
Ryan and Anna met while attending Kennesaw State University and married in October of 2012. Six years later, Ryan, 34, was in his 10th year working as a government intelligence analyst, and Anna, 33, was starting a promising new job in marketing.
“We were just sort of gallivanting through life like most people in their 30s,” Anna said.
On Feb. 6, 2018, that all changed. Ryan had a massive stroke after the couple went to bed for the night
“Thank God he fell out of bed because I don’t think I would have woken up,” Anna said. “I rushed to his side. I could see something was wrong.”
Ryan could not stand up or speak. He had weakness on his right side.
Ryan and Anna spent months at Kennestone Hospital, Atlanta’s Shepherd Center, its partner program Shepherd Pathway, and the Aphasia program at the University of Michigan. That was followed by a year of doing teletherapy with the staff in Michigan.
“Ryan came to us with strengths in writing and using technology, and we built on that,” said Carol Persad, Ph.D., director of the University Center for Language and Literacy, the home of the University of Michigan’s Aphasia Program. “He also was a great role model for others in that he was so open to using new and different ways to communicate.”
In their journey, the Teals recognized that most practice guides for people with aphasia are written as children’s books. That got the wheels turning in Anna to develop Aphasia Readers, which are geared more to adults, those most likely to have the disorder.
Staff at the Aphasia Program at the University of Michigan gave feedback and some guidance from a clinical perspective on the books’ development. But Persad said the books are all the work of Ryan and Anna.
“This is just the start of what we hope to see in the aphasia community – more resources that are well-targeted and that are also relevant to people with aphasia,” she said.
The first of the “Aphasia Readers” came out last November. Another will be available this month, and a third is scheduled for release in 2023. Some of the proceeds from the book sales are going to benefit aphasia research, said Anna, who quit her job back in 2018 to help Ryan and now has her own marketing business that’s local to Canton.
Ryan’s communications skills have improved quite a bit and have surpassed his doctor’s expectations, Anna said.
He communicates primarily with a single word, but he also has functional phrases that he uses every day, such as “Tie my shoe, please.” He air writes, spelling out words with his finger in the air, a very common technique used by those with aphasia. And lastly, he uses technology, mostly his phone, to text, and listens to others through his speech-to-text app.
He is still in speech therapy and continues to improve, Anna said.
“It’s been an incredible journey to go from a tragic circumstance at a young age when we were totally unprepared to where we are now,” she said. “God has put so many wonderful people in our path to help make a difference.”
The National Aphasia Association says the communication disorder affects about 2 million Americans and is more common than Parkinson’s disease, muscular dystrophy or cerebral palsy. About 180,000 people in the U.S. acquire the disorder each year.
On the potential for patients to improve: “I don’t know that we have ever seen someone with aphasia who could not make progress when given the tools and access to professional therapy ...,” Carol Persad, Ph.D., neuropsychologist, and director of the University Center for Language and Literacy in Michigan.
About the Teals’ Aphasia Readers: Level 1 (published in 2021), Level 2 out this month. Level 3 is scheduled for release in early 2023. Each book costs $34.99 with a portion of the proceeds going to aphasia awareness and helping others pay for intensive speech therapy. The Level 1 book is on sale through June 30 for $29.99. Learn more: aphasiareaders.com