In years that followed, congressional hearings were held, state task forces were convened and city committees were formed. Research dollars were allotted as well. But those were the 1980s, when Ronald Reagan was president, and despite the fact that embryonic stem cell research had been conducted in the U.S. since the middle of the 20th century, contributing to such wonders as vaccines for both rubella and polio, it was rebranded and became strongly associated with abortion. In the years that followed, despite the well-known fact that stem cell research was the most promising path to finding cures for Alzheimer's, Parkinson's, diabetes, multiple sclerosis and other diseases, this country allowed the personal beliefs of the anti-abortion forces to become public policy. And that lasted a very long time.
The great art of political compromise is a fundamental part of our representative government. Deals are made in which one side cashes in some influence in order to move something along. This is what apparently happened last month, and shortly afterward, White House spokesman Reid Cherlin announced that President Barack Obama had "directed (the National Institutes of Health) to formulate the best method for moving forward with stem cell research, both ethically and scientifically."
In his grand exchange, the president traded away an essential piece of what he had only recently said he believed. When he campaigned, Obama said he supported the "therapeutic cloning of stem cells." But as president, he has already traded that position for one that some see as more politically realistic. Under the compromise, the president proposed that federal dollars be allowed to pay only for research on stem cell lines created from surplus fertility clinic embryos, but that funds continue to be barred from stem cell lines created in the laboratory to study particular diseases. Also barred is financial support for creating new, genetically matched stem cells for use in the treatment of disease. That is the very "therapeutic cloning" research that the president once supported.
After the president issued his executive order, many scientists shrugged; it was, they said, the compromise they'd expected.
I understand the value of a good trade, but I don't see what makes this one worthwhile. Every American, everybody everywhere, ought to support all possible efforts to find a cure for Alzheimer's disease. My mother was one of 4.5 million Americans with it; today there are 5.3 million, and by 2050, experts project 16 million American Alzheimer's patients, a surge that can be attributed partly to longer life spans and partly to increased diagnosis. Worldwide, 26.6 million people have it.
My family paid for home care with an exchange of goods; Medicaid paid for the next eight years of care in the nursing home, where my mother died at 64. Today, out-of-pocket costs for families caring for those with Alzheimer's and the other dementias are triple what they are for other illnesses, and the yearly cost to the U.S. economy is now at $148 billion. Every 70 seconds, someone develops the disease.
Years ago, as my sister began giving me pieces of silver, there again were the long, flat knife handles that I had gently fingered during Thanksgiving dinners, the forks I balanced on the backs of my hands as my parents told stories, the spoons from which I had fed the dog under the table. There was a time when I thought that people were supposed to have silver and china and crystal, and I expected to have them, choosing them at the time of my own wedding. It seemed a tribal currency that was securely in the bank. Merely silver, perhaps, but to me it had been gold bullion, a representation of the standard below which you did not slip.
Then the situation changed, and the flatware would be counted among the least of our losses during that awful time.
Right now, the NIH is formulating the research guidelines for the new stem cell policy and has opened a 30-day public comment period.
Here are mine: Not all trades are equal. Sell your stuff? That's easy. But never hock your values. You can't get those back a piece at a time.
Marion Roach writes for thesisterproject.com.